I’m very proud of what we’re doing. It’s at the opposite end of the spectrum of being diagnosed with a terminal disease. I feel totally empowered.
Adam Hayden, a GBM patient and patient advocate who lives in Indianapolis, serves on OurBrainBank’s board. Adam and Jessica, who both write blogs about their experiences with GBM, became familiar with each other online and realized they had much in common in the way they live with their diagnosis. When Jessica eventually spoke to Adam about becoming involved in OurBrainBank, it didn’t take him long to realize it was something he wanted to be a part of.
“There was an opportunity to get in on the ground floor, to exercise influence and really shape a movement,” Adam said. “I see myself as a representative for the GBM community.”